Frontotemporal Dementia Caregiver Support Center

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Caregiver Issues - Late Stages of Life

The information on this page is for reference and educational purposes. There is no substitute for seeing a doctor.
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"Alzheimer's can be called the long good-bye. You grieve about the loved one from the moment you begin to observe the gradual loss of memory and the speech and personality changes, because they are incurable. The person you love is gradually changing before your eyes. You say good-bye many times until the final good-bye at death."
--- Norma Wylie, 1996 (in Sharing the Final Journey: Walking with the Dying)

 

Best FTD Resources



What If It's Not Alzheimer's
© 2003 by Lisa Radin and Gary Radin


Association of Frontotemporal Dementia (Website)

 

Pick's Disease Support Group (Website)

 

University of California, San Francisco (Website)
Family Caregiver Alliance (Website)

 

National Institutes of Health (Website)

 

 

Other Internet Articles



A Letter of Last Instructions

A letter of last instruction is an organized way for you to give your family all the facts about your finances -- and have a basic tool for your own money management.

http://info.ag.uidaho.edu/resources/PDFs/CIS0958.pdf

Letters of Instructions are known as additions to wills, can be created for items that might not merit inclusion in a will, but nonetheless need to be distributed. These letters, which can be very detailed, might arrange for the disposal of old files, instructions for tasks like the upkeep of a home or what to do with a loyal canine companion. Take note that letters of instruction are not legal documents so, items of personal importance or high value should be included in a will.

Public Broadcast Systems offers a website called
"On our own terms"

http://www.pbs.org/wnet/onourownterms/

Idaho Website

http://www.idahoptv.org/dying/

Do you have a hospital bed? If so lower it so that you
get a better center of gravity, have the commode next
to the bed - so that once he is in a standing position
(pants down) its a matter of pivoting and landing him
on the commode. Then the reverse to get him back in
bed.

Is there a nursing home, or college that offers
training for nurses aides? What you really need is a
mini seminar on transfering patients safely. For your
own sake mainly. I wonder if the Alzhiemer Association
or Visiting Nurses could come in and show you some
transfering techniques that might make it easier for
you. Also - get a gait belt that will save you a lot!
It's a green woven belt that you put on them, and it
gives you something to grab onto. Ask that nurse that
comes in about it - she should be able to show you how
to use it.

http://www.caregiverproducts.com/site/270651/product/CKE%2080126



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