Frontotemporal Dementia Caregiver Support Center

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Caregiver Issues - Stories

Quick Links

This web page was created to list stories found on the Internet about families dealing with or have dealt with someone in their family with FTD.

The goal is to help you understand what other families have gone through to help you understand what you could be going through in the future. In some cases, you will be able to relate to some of the stories now.

If you know of other stories on the Internet please let me know, and I will get the story added to the list below.



Best FTD Resources



What If It's Not Alzheimer's
© 2003 by Lisa Radin and Gary Radin

No information was found on this website about this topic.

Association of Frontotemporal Dementia (Website)

No information was found on this website about this topic.

Pick's Disease Support Group (Website)

Caregiver Stories from different diseases
Pick's Disease by Dr. Bob Fay

University of California, San Francisco (Website)
Family Caregiver Alliance (Website)

No information was found on this website about this topic.

National Institutes of Health (Website)

No information was found on this website about this topic.

 

Other Internet Articles



Lynn Jackson has FTD and made a presentation at the Saskatchewan Alzheimer Society Awareness Luncheon in Saskatoon and Regina in 2002.

http://www.dasninternational.org/2002/lynn_regina.php

Christine Bryden has FTD and made a presentation at the Alzheimer's Disease International in 2002.

Christine Bryden Story

A news article with Helen-Ann Comstock being interviewed about her husband Craig who had FTD(July 2004).

Brain Disease Often Misdiagnosed

Marilyn Keck Story

http://www.angelfire.com/ia/dougkeck/keck.family.html

While the music is playing you can scroll down the page and read about Marilyn.

Who will I be when I die?
Boden, Christine.

North Blackburn, Victoria, Australia: HarperCollins Religious, 1998. ISBN: 1863717331.
Christine Boden was 46 when she was diagnosed with Alzheimer's disease. Her diagnosis has since been changed to frontotemporal dementia. Green-Field Library Call Number: WM 220.5 B666 1998

Living with ALS: A Guidebook for recently diagnosed persons with ALS, their families and significant others

http://55jer.com/randysalsmanual.htm

CBGD Caregivers Report
Corticobasal Ganglionic Degeneration

CBGD Caregivers Report

Frontotemporal dementia affecting a U.S. Air Force Officer

FTD affecting a U.S. Air Force Officer

Mary's Place

http://www.simplesite.com/mothermary

Hoffman Family Home Page

http://www.bhoffcomp.com/coping/hoffmann.html

+11/30/06 (Mike aka 'Grit')

The Other Dementia

San Francisco Chronicle
Katherine Nichols

http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2007/02/25/CMGSQNSC8F1.DTL&hw=dementia&sn=001&sc=1000

+03/20/07 [D1022]

A story about Hockey player Gordie Howe, who's wife Colleen has been diagnosed with Pick's Disease.

http://de.sports.yahoo.com/05112006/9/thn-trading-elbows-with-mr-hockey.html

+11/07/06 (Patty H.)

The Tangled Neuron
The website is from a lady name Mona who's father has Alzheimer's. Mona has some links on her site that may be useful.

+11/15/06 (Mona J.)

The alzinfo.org website offers this web page about a teacher with FTD.

+11/15/06

The John Mackey Story

The John Mackey Fund Website

http://www.johnmackeyfund.org/

The News & Observer offer this article called,
Ex-Colts star Mackey a forgotten man

http://www.newsobserver.com/122/story/388819.html

The BaltimoreSun.com published this article called,
"Brush with greatness"

http://blogs.baltimoresun.com/sports_custom_roch/2006/05/brush_with_grea.html

NFL increases aid for retired players

http://www.examiner.com/printa-1011233~NFL_increases_aid_for_retired_players.html

Article called "Beyond the '88 Plan'"
found in the Harvard Crimson Online Edition

http://www.thecrimson.com/printerfriendly.aspx?ref=518549

+11/16/06 (Patty H.)
+11/12/07 (Patty H.)[D1006]

Bob's Moore's gift to science is helping shed light on the mysteries of dementia

http://www.philly.com/mld/philly/news/breaking_news/13961528.htm

+11/16/06 (Heika S.)

Mother's Last Christmas Gift

http://www.rockies.net/~united/charlene/chrisgift.html

+11/17/06 (Ann S. & Charlene F.)

The Chicago Sun-Times did an article called, "Brain disease strikes those in middle age"

http://www.brain.northwestern.edu/pdfs/newsarticles/SunTimes_FTD_article_9-2005.pdf

+11/16/06 (Heika S.)

The Minneapolis-St. Paul Pioneer Press ran this article about a father who had FTD.

http://www.topix.net/content/kri/3844413781377185290725007367991492233016

+11/25/06 ()

Meg Posts Several Stories About Her Dad

She also has a video about her dad on the site too. It is 13 megs in size,
but is worth watching.

http://barefootmeg.multiply.com/tag/dementia

The video can also be seen at

http://barefootmeg.multiply.com/tag/dementia

+04/02/07

A Caregiver's Perspective on Frontotemporal Lobe Dementia

http://boi-xen.livejournal.com/3669.html

+11/09/07

Questions linger for Domenici

Senator Pete Domenici for New Mexico has been diagnosed with FTD

http://seattletimes.nwsource.com/html/politics/2003931078_pete07.html

+11/12/07

Race aids healing for ex-wife of dementia patient

Provo Utah newspaper Daily Herald on November 11, 2007

http://www.heraldextra.com/content/view/243227/4/

+11/12/07 [D1004]

The Vanishing Man

Times Online in the United Kingdom

http://women.timesonline.co.uk/tol/life_and_style/women/families/article2715310.ece?token=null&offset=0

+11/12/07 [D1005]

'It's my life'
Woman copes with husband's early dementia, raises awareness

http://www.theunion.com/article/20071116/NEWS/111160146

+11/18/07 [D1008]

Family Struggles with Rare Disease
The NewsConnection in Texas

http://www.thenewsconnection.com/article.cfm?articleID=2148

+11/21/07 [D1014]

From Odd Behavior to a Difficult Diagnosis
It Wasn't Cancer, Depression or a Stroke. So What Was It?

Wishingtonpost.com
by Sandra G. Boodman

http://www.washingtonpost.com/wp-dyn/content/article/2007/07/09/AR2007070901320.html

+11/22/07 [D1019]

Pick's Disease
Wash Park Prophet Blog

It is about the fourth blog down.

http://washparkprophet.blogspot.com/2007_07_04_archive.html

+11/22/07 [D1020]

A disappearing dad
globeandmail.com

Written by Matt Hartely

Click here for PDF file

+11/25/07 [D1022]

Gun charge dropped against trooper with brain disease

by Jay Davis
VillageSoup.com

http://knox.villagesoup.com/Government/story.cfm?storyID=104199

+11/25/07 [D1024]



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