Best FTD Resources
What If It's Not Alzheimer's |
Chapter 22 Chapter 23 |
Association of Frontotemporal Dementia (Website) |
2005 Caregiver Conference General Session Videos |
Pick's Disease Support Group (Website) |
No information was found on this website about this topic. |
University of California, San Francisco (Website) |
Family Caregiver Alliance (Website) |
National Institutes of Health (Website) |
Other Internet Articles
The National Alliance for Caregiving had this prescription from the Surgeon General for caregivers that Johnson & Johnson created. It is unbranded and they are encouraging doctors and other health professionals, administrators of support groups and other caregivers programs (that this site!) to prescribe it. So I am giving the prescription and as a caregiver I hope will you read the instructions careful and do as it says whenever possible! http://www.strengthforcaring.com/util/press/info/Prescription-for-Caregivers.pdf +11/06/06 (Don B.) |
Yahoo Health offers a web page about dementia. This information was created at a company called Healthwise here in Boise, Idaho. I worked at Healthwise for about 5 years.
http://health.yahoo.com/ency/healthwise/uf4984;_ylt=AlXxwoZ_3nscslGKRRyhZjamxbAB +11/15/06 |
WebMD provides valuable health information, tools for managing your health, and support to those who seek information. If you decide to search for something like "ulcer", if you click on links under "Sponsored Links" you will be taken to a website where they are here to sell you something. Please be careful if you select a link under "Sponsored Links". Go past these links to the links that have the following phase, " WebMD Medical Reference from" or starts with "WebMD". A lot of these links point to information from a company called Healthwise. |
Ivillage |
The Desert Southwest Chapter for the Alzheimer's Association provides a checklist that has useful information. |
TTMed Dementia offers a slide show like Modules about Family Caregivintg for Patients with Alzheimer's and Dementia. There are several Modules you can go through and pick out thing that may help you. |
The Regional Dementia Management Strategy of Ten Top Tips for dealing with people with dementia. This article has more emphasis for professional caregivers, I believe it can be used at home too. http://www.bendigohealth.org.au/Regional-Dementia-Management/TenTips.html |
In The Ribbon Newsletter there is an article with a checklist for a Alzheimer's caregiver. |
Oregon Health and Science University |
Duke’s Aging Center Family Support Program at Duke University established the first support groups in NC for families of adults with memory disorders in 1980 with Duke Hospital Auxiliary and NC Foundation grants. http://www.geri.duke.edu/service/dfsp/about.htm +11/05/06 |
A Yahoo Support Group Member suggested this site that she found useful as it talks about the effects on us of not having emotionally available mothers for whatever reason.
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The National Alliance for Caregiving is dedicated to providing support to family caregivers and the professionals who help them and to increasing public awareness of issues facing family caregivers. They have some good publications. +11/06/06 (Don B.) |
The National Institute of Aging provides this information about "Long-Distance Caregiving." It gives 20 ways (questions) for long-distance caregivers. http://www.nia.nih.gov/HealthInformation/Publications/LongDistanceCaregiving +11/06/06 (Don B.)
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Alzheimer Europe offers this web page about When using this site on the left side there will be about 7 different topics for you to pick from. http://www.alzheimer-europe.org/index.php?lm1=10151085A169+11/14/06 |
Caregiver.com provides this article call "Caregiver Stress" http://www.caregiver.com/magazine/2006/jan-feb/caregiver_stress.htm +11/17/06 (Jeanette D.)
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The SeniorNavigator in Virginia offer this article to help people with who have someone with mobility problems in their home. http://www.seniornavigator.org/learn/emergencypreparedness.pdf +11/17/06 (Jeanette D.) |
The Dementia Advocacy Support Network International (DANSI) has a chat room on the www.alzinfo.org website called "DANSI" You can chat with care givers and persons with various types of
dementia. We exchange information, ideas, and often times just sit
and visit and get some much needed stress relief! http://www.alzinfo.org/community/chatrooms/ +11/18/06 (Mary M.) |
The Twenty-third Psalm website offers a list of different caregiver websites. http://thetwentythirdpsalm.com/Caregivers.shtml +11/19/06 (Jeanette D.) |
The Journal Star published this article called, "Immune system test shows coping skills not a magic pill" http://www.journalstar.com/articles/2006/05/23/stat/doc447202d25b46f006479912.txt +11/25/06 (Ginny B.) |
Caregiver.com provides this article call "Caregiver Stress" http://www.geocities.com/caregiving4alz/save_the_caregiver.htm +11/19/07 [D1011] |
Caregiver: Recognizing Burnout +11/19/07 (Deb)[D1013] |