Research Opportunities - Brain Endowment (Donation)
The information on this page is for reference and educational purposes. There is no substitute for seeing a doctor.
Why you need to think about donating your loved one's brain upon death...
Brain donation will provide families with a definite diagnosis. No doctor can fully know an accurate diagnosis until an autopsy is done. A pFTD and their family need to talk about donating the brain to help research to find why FTD is occurring and to find a cure or preventionfor future generations. The pFTDs probably would not want to see their children and grandchildren having to go through this, and most likely neither do you.
Most research centers will take the brain out for no charge, but you need to prepare for that day. You need to have the proper paper work done and everyone who is involved ready. Several of the websites below offer information on how to prepare.
Please think about donating the brain.
Research Centers that can help you
When you have decided to donate find the nearest center to the pFTD. Ask the research center the basic questions. Some of these questions will be answered on their website.
- Do they provide the removal of the brain free of charge?
- Do they provide pay for the transportation fees?
- Do they provide a diagnosis free of charge?
- What forms need to be filled out?
- Talk to someone at the brain bank and make sure you know everything they will do when the pFTD passes away. The last thing you need is any hidden surprises.
If you cannot find a research center near you, try contacting some of the larger research centers, such as the Mayo Clinic. Some have research money to pay for the removal of the brain and transportation.