Frontotemporal Dementia Caregiver Support Center

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Local Support Groups

The information on this page is for reference and educational purposes. There is no substitute for seeing an attorney. Nothing contained in these publications are to be considered as the rendering of legal advice for specific cases, and readers are responsible for obtaining such advice from an attorney.

Quick Links
Local Groups by Country

This page has a calendar showing you the location, dates and times, and information about current FTD Support Groups in the United States, Canada, United Kingdom area, and Australia. If you are hestitate to join a support group, click on "Reasons to Join" for more information to help you understand why you should join a support group. Under "Start a Support Group" is information about how to start a support group in your area. And under "Local Groups by Country" is the same information you will find on the calendar.

As of April 2007 I am still developing this page. If you know of any good documentation for joining a support group or how to start a Support Group please let me know.

Calendar Issue
Currently Google has a bug in their calendar program. If you click on a Support Group Meeting in the calendar, a popup window will be displayed. The description field is unreadable. If you click on"more details" you will be able to read the description. Sorry for this inconvenience.

Best FTD Resources




What If It's Not Alzheimer's
© 2003 by Lisa Radin and Gary Radin

No information was found in this book about this topic.

Association of Frontotemporal Dementia (Website)

http://www.ftd-picks.org/?p=caregiver.supportgroups

Pick's Disease Support Group (Website)

No information was found on this website about this topic.

University of California, San Francisco (Website)
No information was found on this website about this topic.
Family Caregiver Alliance (Website)

No information was found on this website about this topic.

National Institutes of Health (Website)

No information was found on this website about this topic.

 

Reasons to Join a Support Group




Reasons why I Joined a Support Group
Alzheimer's Association

http://www.alz.org/greaterdallas/documents/Support_group_brochure.pdf

+updated 03/08/09

Support Groups Are Essential to Caregiver Wellbeing

http://www.ec-online.net/knowledge/Articles/supportgroups.html

 

How to Start a Support Group




Alzheimer's & Dementia - Support Groups
Provided by Health24.com

http://www.health24.com/medical/Condition_centres/777-792-798-1582,17537.asp

 

 

 



Local FTD/Dementia Support Groups By Country, State or Province

Nothing contained in these publication are to be considered as the rendering of legal advice for specific cases and readers are responsible for obtaining such advice from an attorney.

Currently not every state, providence, territory, or country has been researched. If you would like to contribute useful links about a Local Support Group in the State or Country you live in, please go to the bottom of the page and fill out the form.

 

 

 

 

Local Support Groups By State

Nothing contained in these publication are to be considered as the rendering of legal advice for specific cases and readers are responsible for obtaining such advice from an attorney. Any form you download should be looked over by your personal attorney to make sure it follows the latest state law.



United States

Alabama

Information for this state has not been reviewed

 

Alaska

Information for this state has not been reviewed

 

Arizona

Information for this state has not been reviewed

 

Arkansas

Information for this state has not been reviewed

 

 

California

Los Angeles
(The Greater Los Angeles Area)

Meeting Date : Every other Monday
Meeting Time : 7:30pm to 9:00pm
Meeting Location : Contact the Facilitator for Location

Facilitator : Joanne Sackheim
Telephone # : 310-276-0347
E-mail Address : josacks1@aol.com
Supporting Organization : In partnership with UCLA

Attendees: This group is mainly for spouses. But others are welcomed.

Website : None

Other Information : None


FTD Support Group
University of California at Irvine


Meeting Date : First Wednesday of the month

Meeting Time : 9:30am

Meeting Location : Contact the Facilitator for Location

Facilitator : Shirley Sirivong and Jean Moonilal
Telephone # : 949-824-8135
E-mail Address :

Supporting Organization : Collaborative effort between UC-Irvine and Orange County Chapter of the Alzheimer's Association

Attendees: Open

Website : None

Other Information : None

UCSF Dementia Support Group
San Francisco

Meeting Date : Monthly, Second Thursday
Meeting Time : 1:30pm to 3:00pm
Meeting Location : UCSF Dentistry Building
                              707 Parnassus, Room D3209
                              San Francisco, CA

Facilitator : Robin Ketelle, RN, MS
Telephone # : 415-502-1053
E-mail Address : ketelle@memory.ucsf.edu
Supporting Organization : UCSF Memory and Aging Center

Attendees: Anyone

Website : http://memory.ucsf.edu/Events/caregivers.htm#support

Other Information : More information on their website

FTD Support Group
Sacramento Area
Fair Oaks, Ca

Meeting Date : Monthly, Fourth Wednesday
Meeting Time : 7:00pm to 8:30pm
Meeting Location : Fair Oaks Presbyterian Church
                              11427 Fair Oaks Blvd
                              Fair Oaks, CA 95628
                          
Facilitator : Tonae Hasik
Telephone # : 916-799-5116
E-mail Address : None
Supporting Organization : Northern California Chaper of Alzheimer's Association

Attendees: Anyone

Website : None

Other Information : None

 

Colorado

Denver FTD Support Group
(Denver Area)
Denver, CO

Meeting Date : Third Tuesday of the Month
Meeting Time : 4:30pm
Meeting Location : Old Colorado Psychiatric Hospital
                              2nd Floor Conference Room
                              4200 East 8th Avenue Denver, CO

Facilitator :
Terencia Beauvais-Nikl, RN
Telephone # :
303-985-2440
E-mail Address :
None

Supporting Organization :
Under the auspices of the University of Colorado Health Sciences Center and the Colorado Chapter of the Alzheimer’s Association.

Attendees:
Anyone
Website :
None
Other Information :
None  

Colorado Springs FTD Support Group
Colorado Springs, CO

Meeting Date : Third Wednesday of the Month
Meeting Time : 7:00pm
Meeting Location : First United Methodist Churchl
                              420 N. Nevada Ave, Room 232
                              Colorado Springs, CO

Facilitator :
Sue Parenteau
Telephone # :
719-266-8773
E-mail Address :
sue.parenteau@alz.org

Supporting Organization :
Alzheimer's Association, Colorado Chapter

Attendees:
Anyone
Website :
http://www.alz.org/co/alzheimers_disease_support.asp#ElPaso
Other Information :
None  

 

Connecticut

Information for this state has not been reviewed

 

Delaware

Wilmington FTD Support Group
(Wilmington Area)
Wilmington, DE

Meeting Date : Last Friday of the Month
Meeting Time : 12 pm
Meeting Location : Christ United Methodist Church
                              6 N Clifton Ave
                              Wilmington, DE 19805

Facilitator :
Carol Lovett
Telephone # :
302-633-4420
E-mail Address :
None

Supporting Organization :
Delaware Valley Chapter of the Alzheimer's Association

Attendees:
Anyone
Website :
None
Other Information :
None  

 

Florida

Information for this state has not been reviewed

 

Georgia

Information for this state has not been reviewed

 

Hawaii

Information for this state has not been reviewed

 

Idaho

Information for this state has not been reviewed

 

Illinois

Caring for Individuals with
Frontotemporal Dementia (FTD) or
Primary Progressive Aphasia (PPA)

Chicago, IL Area

Meeting Date : Third Monday of the Month
Meeting Time : 6:00pm to 7:30pm
Meeting Location : Northwestern Memorial Hospital
                              251 E. Huron
                              Chicago, IL
Facilitator : None
Telephone # : 312-503-0604
E-mail Address : None
Supporting Organization : Northwestern University Cognitive Neurology and Alzheimer's Disease Center

Attendees: Caregivers

Website : Northwestern PPA/FTD Support Group

                Caregiver Support Calendar for Northwestern University

Other Information : All groups meet at Northwestern Memorial Hospital, but note variability in pavilion location and room each month.

 

Indiana

Information for this state has not been reviewed

 

Iowa

Information for this state has not been reviewed

 

Kansas

Information for this state has not been reviewed

 

Kentucky

Information for this state has not been reviewed

 

Louisiana

Information for this state has not been reviewed

 

Maine

Information for this state has not been reviewed

 

Maryland

FTD Support Group
for Family Members & Caregivers
Timonium, MD Area

Meeting Date : Second Wednesday
Meeting Time : 11:00am to 12:30pm
Meeting Location : Alzheimer's Association
                                   1850 York Road, Suite D
                                   Timonium, MD 21093-5143

Facilitator : Susan M. NewHouse, LCSW-C, Social Worker, FTD Clinic, JHMI
Telephone # : 410-502-2981
E-mail Address : snewhou1@jhmi.edu
Supporting Organization : FTD Clinic at John Hopkins Medical Institutions, The Eugene Feinblatt Family Stroke Fund, and the Alzheimer's Association

Attendees: Free and Open to the Public. For Family Members and Caregivers.

Website : None

Other Information : Find out the latest information on FTD. Share expeiences, resources, questions & coping strategies.

Click Here for a Word Document Flyer

Directions: Click here for a Word Document with directions

 

Massachusetts

FTD Support Group
Boston Area

Meeting Date : Last Tuesday of each month
Meeting Time : 7 pm to 9 pm
Meeting Location : Newton, Massachusetts
                              (e-mail them for more information)
                                   

Facilitator : Emily Levy
Telephone # : N/A
E-mail Address : ftd.boston@gmail.com
Supporting Organization : The Association for Frontotemporal Dementias

Attendees: Open

Website : None

Other Information : E-mail ftd.boston@gmail.com and they will add you to an e-mail list where they announce meeting locations and topics.

Directions: N/A

 

Michigan

Frontotemporal/Pick's Disease Care Partner Group
Grand Rapids, MI

Meeting Date : Monthly, Fourth Wednesday

Meeting Time : 6:00pm to 7:30pm

Meeting Location : St. Mary's Health Care
                              Wege Center Room 14
                              300 Lafayette SE
                              Grand Rapids, MI 49502

Facilitator : Karen Bugg RN LSW
Telephone # : 616-913-1044
E-mail Address : N/A
Supporting Organization : Greater Michigan Chapter - West Michigan - Alzheimer's Association (616) 459-4558
Attendees: Open
Website : None
Other Information : N/A

 

Minnesota

Information for this state has not been reviewed


Mississippi

Information for this state has not been reviewed

 

Missouri

Information for this state has not been reviewed

 

Montana

Information for this state has not been reviewed

 

Nebraska

Information for this state has not been reviewed

 

Nevada

Information for this state has not been reviewed

 

New Hampshire

Information for this state has not been reviewed

 

New Jersey

FTD Support Group
Marlton, NJ

Meeting Date : 4th Wednesday of each month
Meeting Time : 6:30pm to 8:00pm
                        
Meeting Location : Alzheimer's Association
                                   3 Eves Drive Suite 310
                                   Marlton, New Jersey 08053
                             
Facilitator : Lisa Radin
Telephone # : 856-797-1212
E-mail Address : Lisa.Radin@alz.org
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association

Attendees: Open

Website : None

Other Information : Please call to be sure meeting is being held

 

 

New Mexico

Information for this state has not been reviewed

 

New York

FTD Support Group
New York, NY Area

Meeting Date : Twice Monthly, First and Third Thursday
Meeting Time : 4:30pm to 5:45pm
Meeting Location : The Alzheimer's Association
                                360 Lexington Ave., 4th Floor
                                New York, NY
Facilitator : Jill Goldman, MS, MPhil, CGC
Telephone # : 212-305-7382
E-mail Address : jg2673@columbia.edu
Supporting Organization : Under the auspices of Columbia University and the NY Chapter of the Alzheimer's Association

Attendees: Anyone

Website : None

Other Information : Anyone interested in attending must call Jill Goldman

 

North Carolina

FTD Support Group
Cary-Raleigh Area

Meeting Date : First Monday of each month
Meeting Time : 7:00pm to 8:30pm
Meeting Location : Carolina House of Cary
                                111 MacArthur Drive
                                Cary, NC 27513

Facilitator : Charlene, Riedl-Leo
Telephone # : 919-966-5039
E-mail Address : charlenerl@neurology.unc.edu
Supporting Organization : N/A

Attendees: Anyone

Website : None

Other Information : Anyone interested in attending must call Charlene.

 

North Dakota

Information for this state has not been reviewed

 

Ohio

Information for this state has not been reviewed

 

Oklahoma

Information for this state has not been reviewed

 

Oregon

Information for this state has not been reviewed

 

Pennsylvania

Adult Children of Persons with Early Onset Dementia
(SE Pennsylvania, Delaware, Southern New Jersey Area)
Philadelphia,PA

Meeting Date : Monthly, Third Thursday
Meeting Time : 6:00pm to 7:30pm
                           7:30pm to 8:00pm (Optional continued discussion)
Meeting Location : Ralston Penn Center, Room 346
                                 3615 Chestnut St.
                                 Philadelphia, PA 19104
Facilitator : Gary Radin
Telephone # : 800-272-3900 (Delaware Valley Chapter of Alz. Assoc.)
E-mail Address : gary@garyradin.com
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association

Attendees: A group focused for 20, 30 and 40 somethings caring for a parent diagnosed under 65 years old and living with dementia

Website : None

Other Information : Parking is available at Chestnut St. meters and lots. A limited amount of free parking is in the building lot accessed from Ludlow Street (between Chestnut and Market)

FTD Support Group
Bryn Mawr, PA
Philadelphia Area

Meeting Date : 3rd Thursday of each month
Meeting Time : 7:00pm to 9:00pm
                        
Meeting Location : Bryn Mawr Presbyterian Church
                                   The Witherspoon Room
                                   625 Montgomery Avenue
                                   Bryn Mawr , PA 19010

Facilitator : Lisa Radin
Telephone # : 215-561-2919 x334
E-mail Address : Lisa.Radin@alz.org
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association

Attendees: Open

Website : None

Other Information : Please call to be sure meeting is being held

 

Rhode Island

Information for this state has not been reviewed

 

South Carolina

Information for this state has not been reviewed

 

South Dakota

Information for this state has not been reviewed

 

Tennessee

Information for this state has not been reviewed

 

Texas

Dallas FTD Caregiver Support Group Meeting
Dallas, Texas

Meeting Date : April 6, 2008 (Sunday)
Meeting Time : 2:00pm to 4:00pm
                        
Meeting Location : Presbyterian Hospital of Dallas (map of hospital)
                                   Meadows Lab A (Perot Building)
                                   8200 Walnut Hill Lane
                                   Dallas, TX 75231

Facilitator : Bill Brown
Telephone # : 214-477-0696
E-mail Address : bill.brown@ny.ddb.com
Supporting Organization : N/A

Attendees: Open

Website : None

Other Information : Dr. Anne Lipton will be in attendance again to support our group. If you have any specific topics you'd like covered, please submit them to me by Friday, March 28th and I'll make sure Dr, Lipton is prepared. In addition to Dr. Lipton, Mike Fetner will discuss Grief Counseling and Ashley Osborne will discuss In Home Care Resources.

Everyone should park in Lot #8 between Perot and Jackson, park close to the Perot building on the Lower Level.  Go in the double doors on Lower level and take your first right down the hall and the Meadows lab will be 1/2 to 3/4 of the way down the hall on the left.

Please confirm your attendance by replying via email. Please let me know if you have any questions.

Thanks,
Bill

 

Utah

Information for this state has not been reviewed

 

Vermont

Information for this state has not been reviewed

 

Virginia

Information for this state has not been reviewed

 

Washington

Information for this state has not been reviewed

 

West Virginia

Information for this state has not been reviewed

 

Wisconsin

Information for this state has not been reviewed

 

Wyoming

Information for this state has not been reviewed

 

 



Canada

Alberta

Information for this state has not been reviewed


British Columbia

Information for this location has not been reviewed

Manitoba

Information for this state has not been reviewed

 

New Brunswick

Information for this state has not been reviewed

 

Newfoundland & Labrador

Information for this location has not been reviewed

Nova Scotia

Information for this location has not been reviewed

 

Nunavut Territory

Information for this location has not been reviewed

 

Northwest Territory

Information for this location has not been reviewed

 

Ontario

Information for this state has not been reviewed

 

Prince Edward Island

Information for this location has not been reviewed

 

Quebec

Information for this location has not been reviewed

 

Saskatchewan

Information for this state has not been reviewed

 

Yukon Territory

Information for this location has not been reviewed

 




United Kingdom

England

FTD Face to Face Support Group Northwest UK
Pick's Disease Support Group
(Liverpool Area)
Liverpool, UK


Meeting Date : Thursday, June 14, 2007 (First Meeting)
Meeting Time : 2:00pm to 5:00pm
Meeting Location : Neurosupport Centre
                              (Formerly the Glaxo Neurological Centre)
                              Norton Street
                              Liverpool, England L3 8LR

Facilitator :
Mrs. Mary Dawber
Telephone # :
01625-879-104
E-mail Address :

Supporting Organization :
Pick's Disease Support Group
Attendees:
Anyone
Website :
None
Other Information :
Click here for a flyer about this Support Group (Word Document)

Northern Ireland

Information for this location has not been reviewed

Scotland

Information for this location has not been reviewed

 

Wales

Information for this location has not been reviewed

 

 

 



Australia

New South Wales

Information for this location has not been reviewed

Northern Territory

Information for this location has not been reviewed

Queensland

Information for this location has not been reviewed

 

South Australia

Information for this location has not been reviewed

 

Victoria

Information for this location has not been reviewed

Western Australia

Information for this location has not been reviewed

 




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