United States
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Alabama
Information for this state has not been reviewed
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Alaska
Information for this state has not been reviewed
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Arizona
Information for this state has not been reviewed
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Arkansas
Information for this state has not been reviewed
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California
Los Angeles
(The Greater Los Angeles Area)
Meeting Date : Every other Monday
Meeting Time : 7:30pm to 9:00pm
Meeting Location : Contact the Facilitator for Location
Facilitator : Joanne Sackheim
Telephone # : 310-276-0347
E-mail Address : josacks1@aol.com
Supporting Organization : In partnership with UCLA
Attendees: This group is mainly for spouses. But others are welcomed.
Website : None
Other Information : None
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FTD Support Group
University of California at Irvine
Meeting Date : First Wednesday of the month
Meeting Time : 9:30am
Meeting Location : Contact the Facilitator for Location
Facilitator : Shirley Sirivong and Jean Moonilal
Telephone # : 949-824-8135
E-mail Address :
Supporting Organization : Collaborative effort between UC-Irvine and Orange County Chapter of the Alzheimer's Association
Attendees: Open
Website : None
Other Information : None
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UCSF Dementia Support Group
San Francisco
Meeting Date : Monthly, Second Thursday
Meeting Time : 1:30pm to 3:00pm
Meeting Location : UCSF Dentistry Building
707 Parnassus, Room D3209
San Francisco, CA
Facilitator : Robin Ketelle, RN, MS
Telephone # : 415-502-1053
E-mail Address : ketelle@memory.ucsf.edu
Supporting Organization : UCSF Memory and Aging Center
Attendees: Anyone
Website : http://memory.ucsf.edu/Events/caregivers.htm#support
Other Information : More information on their website
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FTD Support Group
Sacramento Area
Fair Oaks, Ca
Meeting Date : Monthly, Fourth Wednesday
Meeting Time : 7:00pm to 8:30pm
Meeting Location : Fair Oaks Presbyterian Church
11427 Fair Oaks Blvd
Fair Oaks, CA 95628
Facilitator : Tonae Hasik
Telephone # : 916-799-5116
E-mail Address : None
Supporting Organization : Northern California Chaper of Alzheimer's Association
Attendees: Anyone
Website : None
Other Information : None
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Colorado
Denver FTD Support Group
(Denver Area)
Denver, CO
Meeting Date : Third Tuesday of the Month
Meeting Time : 4:30pm
Meeting Location : Old Colorado Psychiatric Hospital
2nd Floor Conference Room
4200 East 8th Avenue Denver, CO
Facilitator : Terencia Beauvais-Nikl, RN
Telephone # : 303-985-2440
E-mail Address : None
Supporting Organization : Under the auspices of the University of Colorado Health Sciences Center and the Colorado Chapter of the Alzheimer’s Association.
Attendees: Anyone
Website : None
Other Information : None
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Colorado Springs FTD Support Group
Colorado Springs, CO
Meeting Date : Third Wednesday of the Month
Meeting Time : 7:00pm
Meeting Location : First United Methodist Churchl
420 N. Nevada Ave, Room 232
Colorado Springs, CO
Facilitator : Sue Parenteau
Telephone # : 719-266-8773
E-mail Address : sue.parenteau@alz.org
Supporting Organization : Alzheimer's Association, Colorado Chapter
Attendees: Anyone
Website : http://www.alz.org/co/alzheimers_disease_support.asp#ElPaso
Other Information : None
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Connecticut
Information for this state has not been reviewed
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Delaware
Wilmington FTD Support Group
(Wilmington Area)
Wilmington, DE
Meeting Date : Last Friday of the Month
Meeting Time : 12 pm
Meeting Location : Christ United Methodist Church
6 N Clifton Ave
Wilmington, DE 19805
Facilitator : Carol Lovett
Telephone # : 302-633-4420
E-mail Address : None
Supporting Organization : Delaware Valley Chapter of the Alzheimer's Association
Attendees: Anyone
Website : None
Other Information : None
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Florida
Information for this state has not been reviewed
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Georgia
Information for this state has not been reviewed
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Hawaii
Information for this state has not been reviewed
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Idaho
Information for this state has not been reviewed
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Illinois
Caring for Individuals with
Frontotemporal Dementia (FTD) or
Primary Progressive Aphasia (PPA)
Chicago, IL Area
Meeting Date : Third Monday of the Month
Meeting Time : 6:00pm to 7:30pm
Meeting Location : Northwestern Memorial Hospital
251 E. Huron
Chicago, IL
Facilitator : None
Telephone # : 312-503-0604
E-mail Address : None
Supporting Organization : Northwestern University Cognitive Neurology and Alzheimer's Disease Center
Attendees: Caregivers
Website : Northwestern PPA/FTD Support Group
Caregiver Support Calendar for Northwestern University
Other Information : All groups meet at Northwestern Memorial Hospital, but note variability in pavilion location and room each month.
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Indiana
Information for this state has not been reviewed
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Iowa
Information for this state has not been reviewed
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Kansas
Information for this state has not been reviewed |
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Kentucky
Information for this state has not been reviewed
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Louisiana
Information for this state has not been reviewed
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Maine
Information for this state has not been reviewed
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Maryland
FTD Support Group
for Family Members & Caregivers
Timonium, MD Area
Meeting Date : Second Wednesday
Meeting Time : 11:00am to 12:30pm
Meeting Location : Alzheimer's Association
1850 York Road, Suite D
Timonium, MD 21093-5143
Facilitator : Susan M. NewHouse, LCSW-C, Social Worker, FTD Clinic, JHMI
Telephone # : 410-502-2981
E-mail Address : snewhou1@jhmi.edu
Supporting Organization : FTD Clinic at John Hopkins Medical Institutions, The Eugene Feinblatt Family Stroke Fund, and the Alzheimer's Association
Attendees: Free and Open to the Public. For Family Members and Caregivers.
Website : None
Other Information : Find out the latest information on FTD. Share expeiences, resources, questions & coping strategies.
Click Here for a Word Document Flyer
Directions: Click here for a Word Document with directions
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Massachusetts
FTD Support Group
Boston Area
Meeting Date : Last Tuesday of each month
Meeting Time : 7 pm to 9 pm
Meeting Location : Newton, Massachusetts
(e-mail them for more information)
Facilitator : Emily Levy
Telephone # : N/A
E-mail Address : ftd.boston@gmail.com
Supporting Organization : The Association for Frontotemporal Dementias
Attendees: Open
Website : None
Other Information : E-mail ftd.boston@gmail.com and they will add you to an e-mail list where they announce meeting locations and topics.
Directions: N/A
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Michigan
Frontotemporal/Pick's Disease Care Partner Group
Grand Rapids, MI
Meeting Date : Monthly, Fourth Wednesday
Meeting Time : 6:00pm to 7:30pm
Meeting Location : St. Mary's Health Care
Wege Center Room 14
300 Lafayette SE
Grand Rapids, MI 49502
Facilitator : Karen Bugg RN LSW
Telephone # : 616-913-1044
E-mail Address : N/A
Supporting Organization : Greater Michigan Chapter - West Michigan - Alzheimer's Association (616) 459-4558
Attendees: Open
Website : None
Other Information : N/A
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Minnesota
Information for this state has not been reviewed
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Mississippi
Information for this state has not been reviewed
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Missouri
Information for this state has not been reviewed
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Montana
Information for this state has not been reviewed
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Nebraska
Information for this state has not been reviewed
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Nevada
Information for this state has not been reviewed
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New Hampshire
Information for this state has not been reviewed
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New Jersey
FTD Support Group
Marlton, NJ
Meeting Date : 4th Wednesday of each month
Meeting Time : 6:30pm to 8:00pm
Meeting Location : Alzheimer's Association
3 Eves Drive Suite 310
Marlton, New Jersey 08053
Facilitator : Lisa Radin
Telephone # : 856-797-1212
E-mail Address : Lisa.Radin@alz.org
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association
Attendees: Open
Website : None
Other Information : Please call to be sure meeting is being held
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New Mexico
Information for this state has not been reviewed
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New York
FTD Support Group
New York, NY Area
Meeting Date : Twice Monthly, First and Third Thursday
Meeting Time : 4:30pm to 5:45pm
Meeting Location : The Alzheimer's Association
360 Lexington Ave., 4th Floor
New York, NY
Facilitator : Jill Goldman, MS, MPhil, CGC
Telephone # : 212-305-7382
E-mail Address : jg2673@columbia.edu
Supporting Organization : Under the auspices of Columbia University and the NY Chapter of the Alzheimer's Association
Attendees: Anyone
Website : None
Other Information : Anyone interested in attending must call Jill Goldman
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North Carolina
FTD Support Group
Cary-Raleigh Area
Meeting Date : First Monday of each month
Meeting Time : 7:00pm to 8:30pm
Meeting Location : Carolina House of Cary
111 MacArthur Drive
Cary, NC 27513
Facilitator : Charlene, Riedl-Leo
Telephone # : 919-966-5039
E-mail Address : charlenerl@neurology.unc.edu
Supporting Organization : N/A
Attendees: Anyone
Website : None
Other Information : Anyone interested in attending must call Charlene.
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North Dakota
Information for this state has not been reviewed
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Ohio
Information for this state has not been reviewed
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Oklahoma
Information for this state has not been reviewed
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Oregon
Information for this state has not been reviewed
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Pennsylvania
Adult Children of Persons with Early Onset Dementia
(SE Pennsylvania, Delaware, Southern New Jersey Area)
Philadelphia,PA
Meeting Date : Monthly, Third Thursday
Meeting Time : 6:00pm to 7:30pm
7:30pm to 8:00pm (Optional continued discussion)
Meeting Location : Ralston Penn Center, Room 346
3615 Chestnut St.
Philadelphia, PA 19104
Facilitator : Gary Radin
Telephone # : 800-272-3900 (Delaware Valley Chapter of Alz. Assoc.)
E-mail Address : gary@garyradin.com
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association
Attendees: A group focused for 20, 30 and 40 somethings caring for a parent diagnosed under 65 years old and living with dementia
Website : None
Other Information : Parking is available at Chestnut St. meters and lots. A limited amount of free parking is in the building lot accessed from Ludlow Street (between Chestnut and Market)
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FTD Support Group
Bryn Mawr, PA
Philadelphia Area
Meeting Date : 3rd Thursday of each month
Meeting Time : 7:00pm to 9:00pm
Meeting Location : Bryn Mawr Presbyterian Church
The Witherspoon Room
625 Montgomery Avenue
Bryn Mawr , PA 19010
Facilitator : Lisa Radin
Telephone # : 215-561-2919 x334
E-mail Address : Lisa.Radin@alz.org
Supporting Organization : Delaware Valley Chapter of Alzheimer's Association
Attendees: Open
Website : None
Other Information : Please call to be sure meeting is being held |
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Rhode Island
Information for this state has not been reviewed
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South Carolina
Information for this state has not been reviewed
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South Dakota
Information for this state has not been reviewed
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Tennessee
Information for this state has not been reviewed
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Texas
Dallas FTD Caregiver Support Group Meeting
Dallas, Texas
Meeting Date : April 6, 2008 (Sunday)
Meeting Time : 2:00pm to 4:00pm
Meeting Location : Presbyterian Hospital of Dallas (map of hospital)
Meadows Lab A (Perot Building)
8200 Walnut Hill Lane
Dallas, TX 75231
Facilitator : Bill Brown
Telephone # : 214-477-0696
E-mail Address : bill.brown@ny.ddb.com
Supporting Organization : N/A
Attendees: Open
Website : None
Other Information : Dr. Anne Lipton will be in attendance again to support our group. If you have any specific topics you'd like covered, please submit them to me by Friday, March 28th and I'll make sure Dr, Lipton is prepared. In addition to Dr. Lipton, Mike Fetner will
discuss Grief Counseling and Ashley Osborne will discuss In Home Care Resources.
Everyone should park in Lot #8 between Perot and Jackson, park close to the Perot building on the Lower Level. Go in the double doors on Lower level and take your first right down the hall and the Meadows lab will be 1/2 to 3/4 of the way down the hall on the left.
Please confirm your attendance by replying via email. Please let me know if you have any questions.
Thanks,
Bill
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Utah
Information for this state has not been reviewed
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Vermont
Information for this state has not been reviewed
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Virginia
Information for this state has not been reviewed
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Washington
Information for this state has not been reviewed
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West Virginia
Information for this state has not been reviewed
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Wisconsin
Information for this state has not been reviewed
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Wyoming
Information for this state has not been reviewed
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