Best FTD Resources
What If It's Not Alzheimer's |
Chapter 15 |
Association of Frontotemporal Dementia (Website) |
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Pick's Disease Support Group (Website) |
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University of California, San Francisco (Website) |
Family Caregiver Alliance (Website) |
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National Institutes of Health (Website) |
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Other Internet Articles
Example of Empathy A wife (has FTD) could not see if her husband (who was terminally ill) was
in pain at all, and furthermore showed no feelings when he was. She could look at him gurgling away with pneumonia and walk out the
door to go on vacation/holiday saying if he lives fine, if he dies fine and
then phoned her daughter from the airport to say she was off and they didn't
hear from her for two weeks. - Yahoo Support Group Member |
Example of Empathy Lack of empathy is not being able to recognize, feel or care about other peoples pain; apathy is just plain not caring! - Yahoo Support Group Member |
Example of Empathy Grandmother has FTD, when her 13-year-old grandson broke his wrist, she could NOT have cared. - Yahoo Support Group Member |
Example of Empathy My old dog died at the end of December. I loved that darned dog more than I love most people. My father’s (who has FTD) response to it was, “Huh. He died? Oh, well.” Two weeks later, one of my parent’s dogs died as well. His response was the same. He simply doesn’t have the ability to mourn the loss of a person or a pet anymore. He doesn’t have the emotional functioning to care about other people’s pain. - Yahoo Support Group Member |
Example of Empathy In retrospect, we can see my husband had symptoms of FTD for years before he had gall bladder surgery and became totally disabled physically. Our marriage was about over. For years he had ignored my feelings and had no consideration for things that were important to me or his children. He swore that he loved me, but his actions said otherwise. If he had not had surgery in June 2003, he would be alone with this disease now.
Typical argument (before we knew he was ill): Our son was in special ed in high school due to emotional and behavioral issues. My Husband attended some meetings with teachers, other times he "just wasn't interested." Our son was so depressed that we were on suicide watch -- it was that serious. There was nothing I could say to get him to agree to go to the school with me. No sweet talk, bribes or threats would work; he just didn't care. When I would accuse him of not caring about me or the kids, he would adamantly deny it. I would say "You tell me you love me, but you won't do anything I ask you to do. This is important to me. He would say, "No - it's not important." I argued that if it was very, very important to me and he love me, then he should respect my feelings. No - just no. He couldn't care less. It was extremely frustrating.
He's had strained relationships with his kids, and came extremely close to be divorced from me. I had already told him I wanted out and was going to divorce him. He was very upset and could not understand why I would feel that way. When I began to understand his illness, it all made sense. I know he has always loved me, but FTD (or whatever) prevents him from understanding and responding in a way that shows sympathy, empathy, or compassion. There is no way he can put himself in my place or understand my point of view. He is incapable of these feelings. However, he does love me, he wants to hug me and kiss me, and he tells me every day that he loves and appreciates me. That's important, and I'm going to enjoy that as long as I can.
The best way I have found to respond when I make a rule or decide on something that he doesn't want is to say, "I know how you feel, but this is what's going to happen." There is absolutely no sense in wasting time trying to appeal to his compassion or conscience. That part of the brain just does not work any longer. - Yahoo Support Group Member
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