Currently there is no "us." I hope in the future there will be a "us." In fact, I hope for a lot of caregivers contributing to this website. I hope caregivers will help collect information for this website to make this website a useful site to help current caregivers and future caregivers.
As of right now there is only me, Jeff Brauer. I live in Meridian, Idaho (Boise area). I work as a computer geek for a national food distribution company. I love to work with computers, and this is my first major website I have created.
I grew up in a small town, Thompson Falls, Montana. Earned my Bachelor degree in Wildlife Biology at the University of Montana in Missoula. I was a professional firefighter for Missoula Rural Fire District for 9 years and then moved to Boise, Idaho, in 1994.
My brother was diagnosed in September 2005. My brother was a long-haul truck driver, and in the last few years we could can see Randy was changing. He would ask the same questions every time you would talk with him. All I knew of dementia was persons with dementia lost their memory and would get lost easily. My brother, the truck driver, never got lost! As long as he wasn't getting lost, I felt he was okay. So what if he asked me if I rented the movie "Buying the Cow" every time, I spokewith him, several times. Even after we rented it, he would talk about the movie every time, making the exact same comments dozens of times.
In June 2005, he quit is job as a long-haul driver to work in Missoula as a local truck driver so he can be closer to his two daughters. That job lasted 3 weeks before Randy was fired for inappropriate behavior. All we knew was that he was fired, but we did not know the reason.
Randy at sometime took a firearm and dried fired the weapon at his girlfriend's son. The kicker for this was our dad was a hunter safety instructor for years, and Randy followed in his footsteps and had been with the hunter's safety instructor program for 20+ years. This is when the testing started. Physiological testing, CAT scan, and blood work. They could not find anything wrong. They were diagnosing him with a head injury from a truck accident from 6-8 months previously. The doctors were not sure, so they sent Randy to a neuropsychiatic for testing.
I started my own Internet search. I talked with a nurse friend of mine. Told her the symptoms, and she told me that it sounded like a type of dementia. The search began! attempted to seek a possible diagnosis of my brother by researching information on the internet. I found Pick's Disease in a few days, but it took a few more days to find Frontotemporal Dementia. I do not remember why, but it was very frustrating because the of lack of information. Everything that I read about FTD on the internet matched my brother's behavior perfectly. The only thing missing was my brother's picture in the article. Then I would find an article about similar causes that can mimic dementia, such as Alcohol Dementia, and I would research each of them to see if Randy could have it instead of FTD. All my research kept leading me back to FTD. Basically, I didn't want my brother to have FTD, but all the leads to other types of medical diseases proved not to exhibit Randy's symptoms.